Sunday, March 14, 2021

Medical Mysteries

Have you every watched House or The Good Doctor?  It's probably my love of medicine and health care that I am intrigued by these 2 shows.  House, a cranky doctor, that has issues of his own, but can always seem to solve the most complex medical cases.   The Good Doctor, again, a doctor that has his own obstacles to overcome, has a brain to see the complex situations and find a treatment plan.  How I wish these doctors were real, and help us out right now.  

We were fortunate with Brooke's diagnosis and treatment, we did find something that worked.  She still is, and always will be, a medical mystery, but we have come to terms with that.  God has given us what we need to know, and has given us peace on what we don't. 
Unfortunately lately we are dealing with Ashley's continued fainting episodes.  So far there are no answers, and maybe there never will be.  We pretty much have been told, "she'll grow out of it."  Well at 6'2" I think we are done growing, and it's altering her life.  So we are trying to pursue more testing and see if we can get this kid a normal life.  We do make light of her situation, because others have it so difficult.  And she is fortunate to know when it's coming, so she can be sitting, or more often, we catch her.  I can't carry her around like I did when she was little, but Steve and I have gotten good at bear hugging our "little" girl and holding on tight til she comes to.  We know how much we love her and hold her tight, so thinking of how much the Lord loves her and is holding her tighter yet gives us comfort.  

Then onto the other man in my life, my dad.  They made the trip home from Florida this weekend.  Dad had health issues prior to leaving for Florida and was told warm weather and walking would help rehab.  Well, after 3 more hospitalizations, shortness of breath, more weight loss and fatigue, the above advice was wishful, but not right.  Cardiology says it's a lung issue: pulmonology says it's a heart issue.  No one is actually finding out the issue.  It's time to try something different.  The weather isn't as nice here, so they can't get outside like in Florida, but they do have determined family to try and help.  We have his name and information in at Mayo Clinic and are waiting to see if he gets an appointment there.  He also has a doctors appointment this week.  He just wants to know what he's dealing with.  When this man isn't able to drive tractors and doesn't want to eat ice cream WE HAVE AN ISSUE!!!  We pray we find answers and quickly and that God will protect him and mom through this journey.  

We are aware there is only one True Healer.  That is not House or The Good Doctor.  It's our Heavenly Father.  He is showing us His way, peace, patience and importance of being there for each other.  If you have time to pray for my parents and Ashley that would be greatly appreciated.  We have faith in Him. 

This is Ashley's motto in life :)  LOVE THIS KID!!



 

Tuesday, March 2, 2021

Transplant week!!!



 With transplant week upon us, I felt it was time for an update.  All the girls are living their lives to the fullest.  I don't post much because their lives are theirs, and they will post what they want, not mom's version :)  Steve and I are proud of all of them and their accomplishments, finding their passions in life.  Steve and I are here to listen, guide and direct them, loving them the whole way.  

Brooke is doing well.  She came through her sinus surgery like a champ. I wish I could say it "cured her" but that will probably never happen.  It helped her with some of her symptoms.  Brooke doesn't really complain, she just loves life.  

Last night was a first for Brooke, and comical for the rest of us. We were eating supper, all 7 of us around the table, talking about our days.  Brooke made some weird noise (not uncommon at our house) and proceeded to vomit on her plate.  We all stared at her and then started laughing.  Don't be mad at our lack of empathy, with a house of 5 girls you roll with it, and she wasn't sick.  We asked, "what are you doing?"  She was like, "holy cow I just puked!!!"  Brooke does not ever remember puking,  Steve and I remember very well.  That's all she did for about her first year of life.  Hence why they doctors did a nissen when she was almost a year old.  They did surgery and wrapped her stomach around her esophagus, so she had a one way valve.  Food only went down, not up.  Over time, some kids are able to stretch this as they grow.  We've been thinking Brooke's has been stretching, because she could now burp.  Last night we saw proof, that it's opening up.  She was pretty excited something "normal" was happening to her.  We pray this will not be an issue for her, if it is, we will just get it fixed. 

The life of the Koemans!!!  We are so excited for March 4.  It marks 12 years of uncertainty.  12 years of a wild ride with 5 kids, that are now teenagers and adults. 12 years of God's goodness.  We praise God daily for everything He has blessed us with and will continue to do so. 






                             My favorite people!!!!

     

                                                                              This is the true us :)