The Koeman's are never lost for words :) We all have alot to say (all 7 of us). However Friday Brooke got moved into isolation. That means, she is in a special room, with special air flow and the door has to be closed at all times. She can only have her parents and grandparents visit her. There went the small social life we had. To say the least Steve and I REALLY hope our parents love us! It seems her immune system is extremely low. They are trying to find out why. Maybe from chemo and steroids or an underlying problem. They have sent out tests but we were told they take 4 weeks to come back. So we are here for 4 more weeks. That was a slap in the face! The doctor said he will try to call and get results sooner. But til then we wait. On a good note: her c diff is cleared up. She still has diarrhea but it is less and that is one thing that seems be getting under control. Also, a child life coordinator gave us 2 tickets to the Globetrotters for today. So Steve and Leah are headed off to that. I have brought my coffee pot and wii up to the "spa." We are moving in and going to make the best of this. Yesterday Brooke and I danced in the room to Jimmy Buffet music. She laughed and laughed. I also brought my calendar to get organized. Steve has to go back to work eventually, so it's on to plan B. Get organized, get through this and keep smiling. Something good comes out of everything. We have no doubt we will look at this one day and see so many blessings. We have already met wonderful family's and also realize how great our family and friends are. When looking at Brooke's life in the past 6 months God has kept her with us, when "medically speaking" she has had life threatening situations. God is so good!! Thank you so much!!!
"Because of the Lord's great love we are not consumed, for His compassion's never fail. They are new every morning; great is your faithfulness." Lamentations 3: 22-23
5 comments:
Shelly, we pray you will see and feel God in all of this. My heart goes out to all of you and we will continue to pray, pray, pray.
Shelly, we pray you will see and feel God in all of this. We will continue to pray, pray, pray.
Hi Shelly, We continue to keep you guys in our thoughts and prayers. This has turned into a long road, but we just pray you will see God's faithfullness.
Hi Shelly:
I am really looking forward to meeting you. You have an amazing, optimistic attitude. Four weeks sounds like an eternity, if you look at it in one chunk. But, as Jesus tells us, we need to take one day at a time. When you lay your head on your pillow at night, you have confidence that God will greet you in the morning, giving you renewed mercies for each new day.
Does Brooke having something called "Evans Syndrome"? Since I have only "known" you for a few days, I have not read all the back posts. I received a carepage update tonight for another little girl I pray for, and she is being tested for "Evans". The description made me wonder if Brooks is battling the same thing.
I am praying you will feel God's peace and presence surrounding you and Steve tonight.
With care and prayers,
Jane Klingenberg
I am sending prayers your way again tonight!! Prayers for Brooke to get well and come home, prayers for your girls at home who don't understand and just miss their sister, prayers for you both as parents to be so many things to so many people right now, prayers for healing, peace, organization of busy schedules to fall into place, prayers that you as parents feel the support and love of friends and prayer warriors you may not even know. God is in control of even 'out of control' situations!! Keep looking up and PLEASE call me if I can help you with anything. Thanks for the updates which make praying so much easier and specific. Talk to you soon! ~DeLynn
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