So far so good! Brooke is progressing well and back to her old self. Smiley and in charge. She DOES NOT like the staff wearing masks around her so she tries to take them off. Usually after the 3rd unsuccessful try to take off their mask she cries and cries and cries! She's kind of use to getting her way. Her infection has beenS identified and is being treated. Her current cultures are all negative which means the antibiotics are working. She is tolerating her feedings (kind of) and we hope to be heading home Monday or Tuesday. She will still need IV antibiotics for another week + but we can do that at home.
T cells, as I wrote before approx 79% of her T cells (immune system) are Megans. That is a good thing. Dr. Mageed had said in June he was planning on another transplant. So we were gearing up for it. Then Brooke had rhinovirus again so as we were waiting for this to go away they consulted with other MD's around the U.S. and Germany. The other MD's said to wait it out a little longer and had other tests to run. The other tests get a little complicated but short version skin biopsies have been sent to California. My other point is because Brooke had the virus we waited, which is good because her T cells are coming around. Maybe if we wait long enough another transplant won't be needed. Also depending on what these other tests show Brooke may not tolerate chemo very well. If we didn't take our time we wouldn't know that. Praise God!!! He has once again shown us it's HIS timing not ours.
We hope you all have a wonderful Holiday and spend it with friends and family.
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