That's kind of the feeling around here. Like a time bomb! They drew labs for Brooke's T cells on Monday. Those go to Mayo. They will draw the rest of the labs next week Monday. Those go to Wisconsin. What will the results be??? Good, not good, average? What will her future hold, another transplant, no more transplants, can we get rid of the IV's, can we decrease her medications? Can we actually take her out in public???? So many questions but no answers. So we wait. She had IVIG (to increase her immune system) yesterday at clinic so that was a long day. They are checking on something new so that we can possibly do IVIG at home. It's kind of a process but I told them if it keeps us home more we can do it. Next week Monday she has an Upper GI to see why/how she is able to vomit, she goes to clinic and to see the surgeon. Dr. Mageed told me her stomach issues will not be fixed with this transplant. He said it will be "years and years before she eats." Did he have to add the 2nd "year" in there? Steve and I knew it wasn't going to be quick. Just to prove him wrong Brooke took part of my sandwich and shoved it in her mouth. Then she realized what she did and spit it out and coughed. We always have to try and prove others wrong :)
I read a devotional today about fear and courage, and it seemed to sum up my feelings. It said "fear tells us life is unpredictable, anything can happen, but courage replies...'Yes, but God is in control." When you look at life you realize this is it. You don't get to do this again. It again says "I want to live a passionate life. I want to recognize fear but move out with courage." "Life is tough but God is faithful." That is so true for us! Steve and I recognize the fear and live with it, but it will not consume us. God gives us the courage to realize it's in His hands and He will never leave us.
So what ever the answers in the up coming weeks, we will follow His plan. We pray He continues to open our eyes so we follow Him and have peace with His plan.
1 comment:
Fear and courage..."those who hope in the Lord will renew their strength." Sometimes/most times taking lifes journey minute by minute is most precious.
I am praying that the love of Jesus continues to renew you..and gives you strength, as He continues to show Himself real.
In His Grip..barb baumann
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