The results are in....

MY LADIES!!

A day of testing and IV's. Poor kid! After the 3rd try an IV was put in and her testing accomplished. Luckily her IV stayed and they were also able to draw her blood work off if after her test. This round of T cells is complete. The last test was normal. Yes I said n o r m a l :) That seems abnormal in so many ways. Nothing of Brooke has been normal yet. That is a good sign. It means that the immune system Brooke has is working as it should be. This is still just a piece of the puzzle. She still doesn't have the whole puzzle, but the small piece she has is working. Steve and I gage our excitement on how the MD's react. I didn't see anybody that was over joyed today. I saw happiness mixed with reservation. Maybe even slightly perplexed. This isn't normal and there is no book to go by so we learn as we go. In actuality I'm not sure when or if we will ever feel "safe." We are constantly waiting for "what's next."

I did ask about restrictions. I am starting to think I am paranoid and I told them that today. We are ok at home protecting her, BUT if we are turning into psycho parents I need to be steered in another direction. As of today the doctor was not ready to let her free into the world. He said, let's stick to what has worked so far. She hasn't gotten sick so why test it. They test her again in about 6 weeks. So a step in the right direction.

CAT scan: that showed some slight changed. The fibron sheath they had seen in the previous studies was gone. However her vessels still had some narrowing. Her blood work that showed is going down (which is the right direction.) It still looks like she had a clot of some sort and the lovenox injections are working. So we stay on the shots for 3+ months. Can't say I'm excited about it, but things could be worse.

Her new tricks are "running." She says, "watch mom watch," and she takes off across the living room. She's so small it's funny to watch. She also ate some hot dog tonight. Let me define "some." It was like 2 bites, baby bites :) So she can't live off what she eats, but she ate food, not fuzzies, marbles, bouncy balls or anything else non edible, she actually ate FOOD. My nephew calls hot dogs, "barf on a a stick." hehe, oh well, it's a start. Slow and steady wins the race.

1 Thessalonians 5:18 "give thanks in all circumstances: for this is God's will for you in Christ Jesus."

Oct 7 Jesus Calling " Accept each day just as it comes to you, remember that I am sovereign over your life. Rejoice in this day that I have made, trusting that I am abundantly present in it. Instead of regretting or resenting the way things are, THANK ME IN ALL CIRCUMSTANCES. Trust me and don't be fearful."

What a great reminder of how to live our lives. THANK YOU JESUS!! We see improvements and we thank YOU for making them possible!!