Wednesday, November 23, 2011

MRI results and Growth Hormone

I thought last night, "I'm not sure I posted Brooke's MRI results." The reason for this blog is to update on Brooke, I guess I just need to process things sometimes. So it's processed......I'll back up to the appointment.
November 9, we went to The Spa. Because of the weather Steve got to come. My sister in law also came to hang out with Macy. Her MRI went well and then we headed up to clinic. Nothing too new at clinic. Her IgG was in the 300's (not 500's like the last test said). That's ok. We are still watching it and have learned to do her blood work at Spectrum. We go back to clinic in December and draw all her immune studies.
From there we went to her endocrinologist. Her appointment wasn't until Nov. 10. I called there and explained we were going to be in GR the day before and they said "call us when you are done with the MRI, we'll fit you in." GET OUT!!! We called and the MD saw us on his lunch hour. It's not like she was sick or the visit was urgent. Steve and I agree you can tell when MD's are doing what they love. Any way, the endocrinologist called us later that night with the MRI results. Her pituitary gland is very small which is consistent as to why she is very small. She also had some other abnormalities but nothing that seems as if it will have any lasting effects. You understand how I needed to process this. I was sad we once again had ANOTHER system messed up. We did however have an MRI done when she was 4 weeks old. I am trying to obtain those records at least for comparison, not that it'll change anything.
What does all this mean? It means she doesn't make growth hormone like they suspected. We will be starting growth hormone in the next week or 2. I have all the supplies and am waiting on the meds. I asked the MD, "how long will we have to give this?" He said, "if it works, until she is 13 -16 years old." WOW, wasn't ready for that answer! But after thinking about it, it's no different than a diabetic giving themselves shots. We just have to get use to it. It will take approximately 3 months to see if it works. If it works, that's great! If it doesn't, that's ok too. At this point Steve and I are ok with whatever happens. We just want to give her the most "normal" life possible.
Happy Thanksgiving!! I am unable to list everything we are thankful for!! We have more than we could ask for or deserve. At times I have to stop and slow down to remind myself, this is not ours. God has entrusted me with these children, as a gift. God gave me my spouse, as a gift. God gave me possessions I don't need or deserve, as a gift. The list could go on forever, but it's fun to treat life as a gift and not take anything for granted.

Psalm 118: 1, Give thanks to the Lord, for he is good; his love endures forever.


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