We have transitioned into being home. You wouldn't think that would be a hard transition after only 2 nights, but life goes on. Steve kept everything afloat but that doesn't stop the kids from getting dishes and clothes dirty. Parenting is definitely a 2 person endeavor.
Brooke did well on Thursday, our sitter emailed me in the morning stating how good she was doing. Steve can home for lunch and said she was doing great. By afternoon she was tired (to be expected) but acted well.
Night time she woke up at 10:15p and screamed til after 11:30p. She was hitting her head and complaining her feet hurt (foot pain not new) I texted Steve at cards and said I'd give her a few more minutes before I was waving the white flag. After some pain meds and more pain meds, she calmed down. In the morning we started the process all over again with the headache and eye sensitivity. These are side effects of the IVIG she received. So her MD gave her 2 more doses of steroids to calm that. However she still complained her ear "didn't feel right." I asked if it hurt, she said/screamed, "no it doesn't feel right." She also still has a nasty cough. So off to her MD and she was diagnosed with bilateral ear infection and a little noise in her lungs. On Monday she had a chest xray what was not normal but we figured it was viral pneumonia (still could be, who knows). Anyway, he started her on antibiotics for her ears.
She slept good last night. With antibiotics, steroids and Tylenol the odds of sleeping were on our side :) I'd say her color is a little better. We are hoping that yesterday was just a bad day. She gets blood drawn on Monday. Until then we just pray the meds heal her little body.
Devotions today:
Philippians 4:8 Fix your eyes on what is true and honorable and right.
We fix our eyes on Jesus and His peace, that He has this all under control. He knows Brooke's needs and holds her in His hands. He's got this!!!
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