Sunday, October 6, 2013

Spoke to soon!

I've tried to go back and figure out what Brooke updates I've given.  I think the last was GI.  In my last post I commented on how smooth/easy life was going.  It still is, I guess I just got my undies in a bunch this week. 
Brooke went to urology this week.  And we decided to proceed with a urology surgery she needs.  Our urologist is retiring and he feels it's the best time.  Since we'll be scheduling that, we figured now is the best time to take out her feeding tube.  1 stop shopping.  So we get the ball rolling with scheduling.  As I was waiting for the call from scheduling with a date, I get a call from pulmonology (her lung MD).  They said her chest xray had "increased inflammation" and we needed to do further testing.  They feel it's from refluxing.  She had an upper GI that did not show any refluxing and her nissen (so she can't vomit) is intact (for the most part) so that shouldn't be right.  But they ordered a CAT scan.  Because of the abnormal CXR they don't want to approve her feeding tube being removed til they are certain she is swallowing and eating ok, so they want a swallow study.  My head was spinning. I explained to them she's had numerous swallow studies and all normal.  But they have to "make sure."
After about a zillion phone calls (that might be exaggerated) to her MD's, I've come to the conclusion, "whatever."   Very deep, I know :)  I know they have her best interest at heart but when you are in the medical field you tend treat the disease and the findings.  We are her family, we treat Brooke. And if you know her, she doesn't appear nearly as messed up as her medical charts say she is. 
This week, I plan to first of all, calm down :)  I still have a family to run, my husband has harvest to contend with.  Brooke is in no distress, so there are no worries.  Second, I plan to call pulmonology and get a copy of her last chest xray.  I need to see for my own eyes what her results were and the fuss is about.  It's just the way I am.  Third, we go to Devos Tuesday for a swallow study and CAT scan.  This is a normal routine for us, so it's ok.  I pray the results come back quickly so we can proceed with our initial plan. 
His plan is always greater than ours.  Trust and follow Him!

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