Sunday, May 5, 2019

"Legacy"

I've written a few posts over the last few months but I've never actually published them on the blog.  It's strange with the girls getting older, life is their journey.  I feel if something gets written about them, I must have permission.  Brooke is old enough to know her "history" and sometimes she likes to keep it her "history."  A while back she was reading the blog.  My grandma has the blog in books, so Brooke will read through it.  She came out of her room around 10pm, Megs and I were watching TV and Brooke was crying.  She said, "I am SO sorry for what I put you all through.  It must have been terrible."  With those words, there were 2 crying girls and a crying mom.  We explained to her we'd do it all again, for anyone of these precious girls.  The blog has been an amazing tool to keep people updated on this journey, but it's also been great for Brooke to look at her past.

With that being said, April is Brooke's doctor month.  We try and see all the doctors and get labs done.  So far nothing but good reports.  There are always things that won't be "normal" but they are her normal.  Nothing we need to worry about.  Brooke enjoyed her BMT appointment and said, "mom all those people were so happy to see me, but I don't remember them."   One of her nurses called Brooke a "legacy."  That brought a smile to my heart.  Doesn't everyone want to leave some sort of legacy.
We've also seen ENT, endocrine and nephrology (kidney) doctors.  She's had xrays, ultrasounds and blood work.  I use to go online and scour through all the numbers and test results.  But I don't anymore.  I tell myself I need to be more diligent.  I am a nurse for goodness sake.  But I just want to enjoy my kids.  Everyone of them.  I leave the medical stuff to the doctors and just let the kids have their fun.
Brooke and Macy did a girls run club this spring.  Macy rocked out that race on Saturday. So proud of her.  Leah and Brooke got up early to cheer on their sister.  Brooke seems to have hurt her knee.  We are still waiting to see what's wrong exactly, but after 2 weeks I think she's getting slightly better.
 
Ash has been playing lacrosse.  A learning curve for all of us.  We are starting catch on.  It's fun to watch.

Meg's just had prom this weekend.  So pretty!  She cleans up very well :)  So fun to watch them grow up. 
And Leah is finished up a semester at Baker College and starts another one soon.  She also works in ER.  It's fun having someone else in health care.  And having a big sister to help with all these girls. 

It's time to embark on summer, camping, warm weather and slower schedules.  See if we can all find our Legacies.  



No comments: