We had hoped for a plan this week. We were VERY disappointed when the plan never came together. We did finally get to meet with the Bone marrow MD and he didn't really tell us anything we hadn't already heard. They are waiting for test results to come back that take 4-6 weeks. He feels they might be back this coming week. Steve and I are sure that will not happen. We hope we are wrong. They are decreasing her steroids which makes her skin extremely itchy. We are trying to control that without the steroids. Being on steroids for so long has a whole host of other problems we are trying to avoid. Her lungs are doing well. She did have aspiration pneumonia and is almost done with antibiotics. Steve and I did request her chart be sent to U of M for a second opinion. It should be there Monday or Tuesday. The chart probably weighs more than Brooke but we hope someone can review it next week. Again we wait!
The girls got to come up Friday night and see Brooke and hold her. Tricia also came along so Steve and I could meet with the MD's and take the girls out to eat. It was a fun night.
Please pray for answers. We feel we are spinning out wheels at this point. We pray for direction for the doctors and for us as parents.
1 comment:
Dear Koeman Klan:
I was introduced to your blog spot by Riley's class. My name is Barb Meiste. I just thought I would let you know that I had my "second opinion" done at the U of M. I had a bone marrow transplant done this past summer there. ANY questions you have please feel free to contact me!!
My thoughts and prayers are with you all.
Barb Meiste (tbmeiste@sbcglobal.net)
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