We are starting to get somewhere. 2 things happened this weekend that put Brooke into a "category" to help diagnose her. She got almost off steroids and she had a lab result go from 9 to 1500. Big jump, not necessarily good. She had really fast respirations and she is losing her hair (and the chemo has stopped). They feel they are quite certain of the type of immune disorder she has and blood was sent to Mayo today. Unfortunately the high respirations are from rhinovirus, "the common cold." No big deal to people with an immune system, but a big deal to Brooke. So we pray she can fight it off, or that it just goes away.
However the Bone Marrow Transplant shall go on!! So the donor will have testing done this week and Brooke has already had some testing done. She had an ECHO of her heart, a kidney ultrasound, a urine test and a chest xray. (They say that is just the beginning.) Steve and I felt so strange today being happy our daughter has a syndrome. But it means answers and a future. That is what we want. A future with all of our girls together! Thanks for the help and prayers. We will keep you updated.
2 comments:
We continue to hold your entire family up in prayer. We pray you feel all the love and support.
Hey Shelley,
I'm keeping track of you and your family and will keep you in our prayers for continued strength and postive outcome on the transplant. Sawyer was able to come home yesturday night - and is doing much better! I'm super impressed with your strong attitude, smile and upbeat attitude on being there 24/7. God is so good and is giving you that strength to keep going. Don't ever let go of that hope.
Love,
Chelsea
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