Well, I'm over my anger management issues :) I giggle because when someone gets mad, we always try to "diagnosis" why they are mad. I love my friend that called and said, "yea, your mad! Quit taking all this in and get mad! It's not fair and it sucks. It's ok!" Thanks Missi for making me feel "Normal." :) And all the friends that were "ok" with my crabbiness. I Loved all the phone calls and talking with people. With that said, I can't stay mad long. It was over with by Tuesday :) Steve took Brooke to the MD at 7:00am today.(EARLY) He said, yes she has osteopenia, or brittle bones. He showed Steve xrays from when Brooke was in the hospital. Her bones were normal then. Normal growth, no deformities, not brittle. So he said this isn't something she was born with, it's probably medically induced. Which was suspected, but still not fair :) She see's her neuro-developmental MD June 1 and he turfed any further testing to them (watch out Jane here we come :) For now he said we might be seeing more of him. He wouldn't be surprised at all if she broke more bones. At least we are prepared for that, so if it happens it won't be so shocking. He also said they have fracture clinics. So if she has any issues or trauma to call there and we won't have to go to ER. Another answer to prayer! ER is great when you need them, but our anxiety level goes up 10 times when we walk past vomiting sick people with our kid with no immune system. I bet I'm the only parent that got in the ER room and cleaned every surface :) It brings germaphobic to a whole new level :)
Onto my endocrine appointment. I wish I would've change MD's years ago. This guy is great. He has personality and is real. It comes down to I have 2 options. 1st go let my body go into hypothyroid mode now and do the radio active iodine (which is a pill you swallow. The cancer and left over thyroid tissue sucks up the iodine and radio activity and it dies.) Or I can wait. They start me on thyroid replacement now and when we want, or if my labs change, they do the radio active iodine. It could be 6 months, it could be 4 years. The success rate seems to be the same either which way. After Steve and I discussed (people may disagree and that's ok :) we are going to wait. Because the twins are so young I'd have to be away from them for 1 week minimum. I don't see that as a good option at this time. If it was life or death, we would do it, but it's not. So I am VERY excited to live my life, work, play, camp and carry on as normal. So when the time is right we'll do the treatments. God hasn't lead us astray so far and we presume he'll show us the "right" time. Again it's His time frame, not ours.
WOW, wasn't I long winded. It's been fun to be outside and enjoy the kids and warm weather, even got some running in. Life goes on as normal, or as normal as can be. We'll just plan on the "bumps" and continue to be eternally grateful for everyone that helps us through.
Next MD visit is for Brooke on Monday and then again on June 1. I'll keep ya posted.
1 comment:
my dear Koemans, I love you and I am praying for God to come alongside you through a verse/ friends/a song/childrens words/creation. Your decisions are perfect because you are asking God for wisdom and it is being given.
You just KNOW when God speaks, right?:)
I pray you experience Gods smile on you. In His Grip..barb
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