I have many forms of therapy, depending on my mood. Laughter and eating cake pretty much cover any trouble. This weekend I had to run. I do enjoy running. I am not fast, I don't time myself, it's more of a mental break for me. On Friday I called the MD and asked the nurse if I could take Brooke off some of her meds. She said, "oh Dr. Duffner's right here. He's been meaning to call you." OH NO, not talking to the MD. I like and totally respect him but he never tells me everything is great. Well, he talked with his colleague's and they decided the next step is to take Brooke off her IVIG (immune system booster). We will check her blood levels in 3 weeks and we'll know if she is making her own B cells. Now typing this, it really doesn't seem to be a big deal. My reaction last week was a little of a bigger deal. (That means the run worked :) I guess I was not mentally prepared for that. Brooke's numbers have "stalled out." Which we know. But I guess deep down I was content there. It's better than it had been. I didn't like the idea of "testing" her immune system, and R E A L L Y deep down, I didn't think it would work. My reaction was, "we are setting her up for failure," "I can't do this," "what happens if her b cells don't kick in." So I called my therapist, "Steve" aka husband :) and he talked some sense into me. Then Saturday I went for a run and God REALLY talked some sense into me. It's all good. I was once again putting my trust and faith into human medicine. My Faith and Trust belong in Him. He will take care of her. If it works, then YEA GOD, whats the next step? If it doesn't work, then maybe not "YEA GOD", but "Ok God, I respect that" what's the next step? He will not leave us or her.
Unfortunately we've been sick. Good timing huh? Seems like headaches, sore throats, some fevers, I heard of a couple stomach aches. My general consensus is a virus. Brooke refused her feedings by dry heaving and streaming for 2 days. But she drank her water, stayed hydrated and is back at it. She must have some immune system. So far Steve has escaped it. I have laryngitis of all things. Why do kids NEVER get laryngitis?
The girls are making cake with Becky, Brooke's therapist. Macy just benefits from it.

Finished product!! Yes we ate it. I mean really, it IS cake :)


As I am writing this Steve is planting. YEAH!!! That is probably short lived due to the weather this week. But we'll take what we can get (as will any other farmer :) Have a great week.
3 comments:
Reading this reminds me I need to tell you...I love you.
Praying for that immune system to do it's job! You are an amazing Mom, Shelly. You should write a book.
Becky did a WORLD of good for my daughter and we just love her too! And she does make pretty good cake....
Post a Comment