Fathers Day we went to my brothers house and hung out outside and grilled. Nice and relaxing. The girls locked Steve's keys in his truck but luckily we took separate vehicles. Then his dad took him back up there later and Steve got some alone time to "crop tour." (it's a farmer thing) So it all works out for the good.
Brooke's cold is going away, PRAISE GOD!! She is coughing less, and runny nose is less. I feel bad when people see her and I say "don't touch her." We even told Ashley she can't kiss her anymore. We told her just kiss Macy more :) We are waiting on lab results (as always.) The numbers we are waiting on is the percentage of T cells in her body that are Megan and what the T cells they are. We convinced the MD we only need to come to clinic 2 times this week. Thanks to some friends pushing I got up the nerve to ask, "why are we here so much?" That freed up time for us today to do NOTHING!!!! We sat by our "kiddie pool." The girls cousins came over, they played, swam and just had fun. I got to lay out with Leah and have good talks. We had alot of fun.
A concern at this time are her feedings. She is on a new med to stop her gagging/vomiting. She had surgery to STOP the vomiting and spitting up. However she has figured out how to spit up again. If it stops here we can handle it, we just pray she doesn't start to full force vomit anymore. The MD said there are rare cases where the child will either stretch out the muscle around her stomach or learn to vomit through it. We've had enough rare situations. Your prayers for the virus to go away are working so I thought I'd add another thing to my prayer warriors list!!
I did get an email back from a mom that her daughter has Omenns Syndrome. She actually had it 15 years ago. I have her phone number and am anxious to talk to her. Hopefully we'll connect soon. Thank you all!! Hope you have a blessed day and enjoy God's beautiful day!
"Do not be anxious about anything, but in everything, by prayer and petition, with thanksgiving, present your requests to God." Phil 4:6
No comments:
Post a Comment