Thursday, June 4, 2009

No new news

It's been almost a week since I posted and I apologize. I can be honest and say not much has changed. Kind of in a holding pattern. I can also be honest and say I was hoping every time we went to clinic this week they'd say, "oh Shelly you heard us wrong, she doesn't need another transplant." I think I thought by not posting I could ignore the fact Miss Brooke has to do this AGAIN! Reality check......Brooke does have to do this again. I have come to the conclusion we can't change it, so we'll roll with it. Worrying changes nothing. God doesn't want us to waste our time worrying about the future. He will take care of us. He brought us through 5 months at Spectrum and He'll bring us through whatever Brooke's future holds.
Another question I've been asked..............since Brooke needs another transplant is it time to get a second opinion or go to another hospital? Our feelings (this is just our opinion :) no. We can go to a University hospital or even Mayo but they don't know Brooke and don't care about her like Dr. Mageed and his staff does. To us, Devos is all we need at this time. The MD and his staff have such a love for Brooke and our family and want what's best. They are doing their best and as we all know they are the hands of our Great Healer. God decides how things will go and He'll prepare us daily for our journey.
Our week has been busy. Last weekend our girls had their garage sale and had so much fun! It was fun to watch them work all week to set things up and price it. My friend Chris and Steve's mom came over and planted flowers all over the house. They also cleaned up my hill and planted more flowers. What a BLESSING!! It looks so nice. (now I must water them :) I will post pictures when I find my camera, oops :)
Brooke has clinic M-W-F and I work T-TH. Craziness!!! However, Steve is almost done planting and the girls are done with school. YEAH!! Brooke's clinic visits have gone ok. No major changes. We got clearance from the surgeon to have transplant. Now the MD's need to meet with each other and come up with a plan. Brooke does have a virus but they haven't determined if that is affecting her right now. Brooke is on 2 nebulizers in the am and 3 at night, for her lungs. That gives us cuddle time. Also Leah and Megan have been doing tube feedings and nebulizers. What great help they have been.
Today we got the gift of pictures. We were so blessed to get to have the girls pictures done by Christy Pacanowski. Someone is teaming up with Christy to give us this gift! WOW!! It was so fun to watch the girls interact. I got in touch with Christy on Saturday about this and she got the girls in already this week. I am amazed how everything falls into place. Thank you Christy and "donor." :) You have all made us smile. Can't wait to see the pictures.
WOW that got lengthy. Maybe I should post more often? Thank you all for the meals, cards, gifts, calls and prayers. I don't know where we would be without all of you. I have fallen behind on thank you cards, I apologize. Please know you are all dear to us and have a very special place in our hearts. God bless!!

No comments: