Good News!!

Thursdays numbers were again good!! 10.6! She is holding her own so the Dr. said we could decrease her steroid to 3 times a day. YEAH! Maybe she'll feel a little better. Right now she has really chubby cheeks and her skin is dry from the steroids. Along with being sore which she can't tell us with out screaming. Most days she has a really concerned look on her face. Anyway, they gave her IV antibiotics again to help protect her lungs. She had a reaction to those and screamed crazy, turned really pale and her oxygen level went down. So she didn't get the full dose. Once they stopped them she did better. I asked the MD if this is "going away." (Our dream :) He said not yet. She is currently compensating for it. The meds have helped her body realize it is there and that it has to make extra red blood cells to keep up. The plan is if she continues to keep her hemoglobin up she can have chemo every other week instead of every week.

Her weight is still at 9# 12 oz. She eats small amounts but it takes all her energy to make the extra blood cells, and with steroids and chemo she doesn't always feel like eating. This has her pediatrician concerned some. She is on a high calorie formula. Steve and I know our babies and they have never been small, so we feel she'll catch up. Macy is 14# 10 oz!! There is a 5# difference. People don't even know they are twins, which is ok. They have their own individuality. God has given us the peace that this is in His hands and His timeline. "Don't let your hearts be troubled. Trust in God and trust in me." John 14:1

We are trusting in Him!

I posted some pictures of her nurses at Spectrum. Jon takes her vitals and blood. Chris runs the clinic and watches her while she gets transfusions and IV's, Chris also runs around with Macy as she works. She's good at multi tasking. (Carrie escaped the camera, we'll get her next week :)