Another day......

Steve, Leah and Brooke when to clinic today. It was fun for Leah to get to see what happens at clinic. Our goal is to get each of the girls there when we have short days. Steve also "buttered" up the doctors by bringing blueberries. (thanks mom, dad and Brent :) We'd like to get down to going to clinic once a week instead of twice. No word on that yet. Monday they did a viral panel on Brooke and found rhino virus (big surprise, not!) I guess June 30 she was virus free! Because we were inpatient and Brooke had tons of other stuff going on I never asked for those results and didn't get to do our JAZZ HANDS dance. So she was virus free for a few weeks. Now we are back at it. Tonight she was just tired and her temp is 99.6. If that was any of the other girls I wouldn't worry, but with Brooke that puts my stomach in knots. I pray it doesn't go higher. If it goes to 101 we have to go in the hospital. Please pray it goes down and it's just an over protective mom worrying. Her feedings are going.... we have increased the amount of formula and she doesn't like it, but she's tolerating it. Next week we have an appointment with therapy (you may remember what Steve and I think of therapy). We said we'd go for a consult and then just let her sisters take over. They work her out daily at home. We also have consults with Early On through the County to get her developmentally up to her age. They will come to the house which will be nice.

Brooke has her own fridge. How lucky is she :) I couldn't handle the meds and clutter. These are only IV meds. But it free's up some space.

I also want to thank EVERYONE for all the wonderful meals! We still have a few in our freezer and I don't know where we would be with out all your kindness over the last year. If I could ask you.............if you have made us a meal or if you have a recipe you love please email me the recipe. The girls are going to put together a cookbook! Good summer project. sskoeman@yahoo.com Thank you for your help. It's so awesome to see the wonderful caring community we live in. God is good and is caring for our every need with all of you helping. Thanks again!!!

This is a video of Miss Brooke Rockin in her chair.