That appears to be what we are looking at with Brooke. It commonly comes after a virus (which Brooke has had) and is treated with IVIG (which Brooke always got in the past to boost her immune system). Last week Steve and I noticed more bruises on her legs. But she's 4 years old with a bunch of sisters. I will be honest and say, they beat each other up quite often. On Thursday she bumped her back, slightly, and I watched it turn black before my eyes. I told Steve then, I was worried. Steve was gone for a couple days with work, and when he got home, he said, "Somethings not right." Her color was off. Over the weekend we noticed a red petchial rash. I then knew we had issues. But being the weekend, and she was acting like normal Brookie, we waited til Monday to avoid an ER visit. Hence, here we are. 1 dose of IVIG was given last night. It actually got done at 4am. Labs were drawn at 7am and platelets were still low. Because I don't have the sheet with lab values in front of me, I won't bore you with numbers. The medicine didn't have much time to work before we checked labs again. Today they did another round of IVIG and steroids. We'll see what tomorrow brings.
They do not feel this is related to Brooke's SCIDS. It actually takes a functioning immune system to get this illness. Go Brookie! Way to show them you are "normal." But until her numbers are normal and this never comes back again, we won't hold our breath as to what or why this happened.
She is doing well. This afternoon Miss Dawn brought up her cohort in crime. The nurses were amazed in the change in Brooke, her demeanor and energy. Her color was still off, but she got up, had to get dressed and was trucking around the room after Macy. Macy gives her drive and purpose. Macy was so happy to be here, she said, "all I have to do at home is play with Jack (the dog). It's BORING!" Gotta love these ladies. After school Steve brought up all the girls, we had a pizza party and hung out.
The plan is I stay tonight and if the numbers are right, we head home in the morning. If the numbers are not right, Steve heads up tomorrow night and we start the "switch" again. We know the process. It's just different now that Brooke and Macy know whats doing on. God is in control. As I have been reminded, "God's got this!" And I believe that with my whole being.
Thank you for the prayers, texts and calls. We cherish them all!!! I wish I could call everyone back but it seems crazy I stay busy up here. Between the doctors, nurses, PA's, and the 4 year old patient there isn't much uninterrupted time. We are grateful for each and everyone of you. Please don't ever hesitate to text, call or email.
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