SOOOOOOOOOOOOOOOOO!!!!

It's like summer never happened!  We got up yesterday and fell right back into routine.  No squabbles, no bumps, nothing.  Strange!!!  The girls were excited.  A new year, new teachers.  Who knows what the future holds.  As a mom, it was ok.  It's about time I got my butt out of bed before 7:30 :)  I will miss my girls.  But no one wants me to home school them.  So here we go.

The twins don't start school til next week.  So that helps.  That could hurt a little :(  The first day I get to go with them.  After, I'm not invited.  But they are excited and its the next step in life. 

The twins are enjoying this week of getting to play with whatever they want, going away with just mom, hanging out with grandma.  It's like a little vacation.  Every night they say, "what are we doing tomorrow mom?"  Too fun!

 

Brooke's been to a couple specialists so far.  We went to the surgeon and discussed her feeding tube.  It seems to cause her pain.  She'll be walking, playing, having a great time and then she'll double over, grab her feeding tube and cry, "my button, my button." It obviously hurts.  Then MD said, "those are unusual symptoms, never had that before."  Go figure.  We put in a different feeding tube and we'll see if that's more comfortable.  If not, we'll have it taken out. Wait and see.

Then we went to G.I. (stomach MD).  She still has the diarrhea problem.  From what we read about SCIDS it could just be part of her.  With a low immune system that effects your GI track.  They ran all the stool studies and all looked good.   That helps us, because we can now give her meds as we need to and not worry we are messing up her system.  I'm planning to try some probiotics.  If that doesn't help we can always use Imodium. 

So far that's all for the specialists.  We have 4 more appointments coming up.  Excited to see her progress in life.