Results are in......sort of!

We got CAT scan results.  I haven't seen them, but the pulmonologist called me and said, her current CAT scan actually looks better than her last one.  So that's a good thing.  And her swallow study was normal (for the numerous time).  It appears her "funny" breathing may be from a hernia she has developed from her nissen (the thing that helps her not to vomit).  We've known the hernia is there, just never correlated the two.  So I called her primary MD and asked if they'd send of the referral to get her feeding tube out.  Then I called the surgeon and said, "ok lets do this."  Then I called the urology surgeon and said, "ok, get this scheduled."  So, it appears Brooke will be having surgery in December to have her feeding tube removed, hernia checked (maybe repaired), and urology surgery. 

As I was talking to friends today, they were saying, "never a dull moment huh?"  Which is so true, we wouldn't want to get too comfortable over here.  However, these are issues Brooke has had for a long, long time.  We never addressed them because we didn't think we had too.  She was always so sick, we honestly thought, the chances of her making it to school is slim, let alone anything else.  So, to us, this almost feels like a small victory.  We made it!  She made it!  God gave us another chance and entrusted us to raise her, love her and make it through another step. 

Brooke has an appointment with bone marrow team next week.  That will tell us her immune system numbers and vaccine titers.  It's been 6 months, so I am interested in those.  Not sure why I care anymore, but curiosity gets me.    As much as all the chatter and busyness gets to me sometimes, I am so in Love with each and every one of these ladies.  I am eternally grateful Steve and I have been given this opportunity to raise these girls and love them.  As crazy as it gets, we know His amazing love, grace and understanding will carry us through. 

 As you know, pictures make me smile.  At times, they make me cry :)  We are so blessed with all these ladies and family and friends that love them!  Above are my grandparents with their Great-daughters.  Pure Joy!  Thank you Jesus!