Still here, but we got a bigger room. Good in the sense we have more room, bad in the sense we are not going home anytime soon. One test has come back negative. This was a good thing, because the mortality rate of that was high! So, Praise God!! On Wednesdays the doctors and physicians assistants get together and "talk" about Brooke's case. Unfortunately it's complicated so there are many different opinions. The one common theme is that she has an immune disorder. What one is what they are checking for. It still looks like she may need a bone marrow transplant. Steve, I and the girls have been tested to see who is the best match. The girls were so brave getting their blood drawn. I am so proud of them! They are weaning her off her steroids yet to see if any of her labs start to come up. Today she has another skin biopsy to see what the crazy rash is. She has been through the tests and still manages to smile and be a fun loving baby. God is so good!
I don't know how to thank everyone for all the help! I am trying to send out thank you notes but I can't keep up!! Every one's kindness and generosity is truly God sent!! God has shown us daily that His hand is in this and He will see us through. Please pray for health for Brooke. If the transplant is going to happen she needs to be as healthy as possible. Pray for understanding of her siblings. It's hard for Ashley to comprehend all of this. Leah and Meg are older, but for them to feel God's peace and love, as well as me and Steve's love for them. I am so thankful Steve and I were brought up with such a firm foundation and Christian roots. Nothing can prepare you for this, but if you know where to rest your fears it's definitely tolerable. We will make the best of this situation. And as always, keep smiling!!!!
2 comments:
Shelly,
Our family continues to pray for Brooke and your family. If we can help just call. Your a amazing family.
Carla
Wow... such an awesome testimony of faith...think of what witnessing you are doing over there at Spectrum! We keep praying:)
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