Brookie screaming! (with her eyes closed of course)
Brookie sleeping!I guess I figured since we were waiting for results I'd make you wait too :) Sorry for the delay! Brooke's weekend was rough! Her skin turned bright red and dry, itchy. She was itching herself til she bled! Poor honey! So they increased her steroids to assist with that. However the steroids make her want to claw someones eyeballs out! (I've never been on them but I hear it's terrible.) So there have been a few sleepless nights of inconsolable crying. Today they gave her meds to calm her down and they will start to decrease her steroids. She did have some testing that showed she has cells in her body she is trying to fight off. (very complicated!) She may have gotten this from her first blood donor in August. The blood bank is trying to figure that out. There was nothing wrong with the blood, but her immune system was so low at the time that the other cells may have taken over. We are waiting for other results and a "plan" but at this time at least we got some answers. It looks like this was something she was born with. It's just kind of snowballed.
On a fun note.....she was screaming on Friday and I found a tooth!! Yeah Brooke! Her 1st tooth, and Macy has 2. All the better to bite each other with. I wanted to show you pictures but neither of them wanted me to take pictures of their teeth. Also Jessica stayed up here Monday night overnight for us. That was crazy!! Steve and I felt like we needed to be here, but it was so nice to be home. The girls were excited when they woke up and we were still both home. Thanks Jessica!!! The doctor doesn't plan on many changes for the next 7-10 days. Just to start feedings slowly. I have no excuse not to post just wanted to give you a heads up. Thanks for all the prayers and support in numerous ways. We have been discouraged a few times this week and every one's prayers mean the world to us! We have not forgotten any of you!!! God is in control! We just have to let Him.
Our View! Not to bad, but we'd rather see a field! Can't take the country out of the girl :)
3 comments:
We are praying for you guys like crazy! I can't imagine how hard it must be shuffling your time!! Let me know if we can do anything!
Thanks for keeping up with your blog. I check it often and we join so many, many others praying for Brooke and all of you as you walk this journey.
Hello Steve, Shelly and girls,
Checking out the blog for the first time... We are keeping you guys in our thoughts and prayers! Not the 1st ones to say it but if there is anything we can do for you to help out please let us know!
P.S. Maybe some pics of Steve with painted hair - and maybe a painted beard might be a nice addition!
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