Another busy week

Steve and Brooke went to clinic Monday. I think they were out in record time! 1 1/2 hours. Steve must scare them :) All checked out ok for the most part. She does have a cold, AGAIN, but if you think about it, she has had a cold most of her life, so she probably misses it when it's gone. Because she has a cold we are going to do IVIG this week again to boost her immune system. There is a "new" way that we can do this at home, but we need to be trained. Work was nice enough to let me work one BIG day Wednesday and then Thursday Brooke and I are off to clinic for IVIG training and to make sure she has no reactions. That'll be a long day but we are always up for learning new things. Please pray this goes smoothly for her. If things don't go perfect with her IVIG in the past she SCREAMS and is in alot of pain. Steve and I are a little nervous to try this because we hate to see her in pain.

This week she started with Speech therapy. They will work on her oral muscles and eating. I just ask they not make her talk more. 5 girls!!! OH THE TALKING!! :) So we have therapy 1-2 times a week for speech and 2 times a week for occupational therapy. + then clinic 1-2 times a week. This little lady needs her own calendar. We are so thankful our insurance approved therapy to be at home. So they come to us, since Brooke can't really leave.

We were weaning her IV meds but that has slowed down now that she has a cold. Hopefully next week we will continue to decrease her dosages. Obviously with cold and flu season coming we need to be really careful. I was hoping to get some restrictions lifted but I think I am too scared to take her anywhere. Just the girls going to school brings in more germs. We can't worry about the germs. She is in God's clean, pure hands.

Psalm 18:1-6 (NKJV) I will love You, O LORD, my strength. The LORD is my rock and my fortress and my deliverer; My God, my strength, in whom I will trust.