We were suppose to do IVIG at clinic but there were some insurance/law issues about getting medicine from a home care clinic and administering it at a hospital. Whatever!! They called and said we couldn't do it at clinic. So then I call Steve and tried to explain the situation but instead cried. I tend to not like it when things don't go as planned :) So my WONDERFUL husband calls the insurance company and everyone else he has to and in the end there is too much red tape. SOOOO we do it at home. I was just so frightened of reactions. If something happens I am 30-40 minutes from Spectrum. But that was not for me to worry about. Then to give it, we have to put a small, short needle in her thigh. Well, I don't want to do that to my daughter. A friend told me to show her a picture of Barney while she gets the shot so she doesn't like him. What a smart woman!!!
Thursday morning shows up, the infusion nurse comes at 11am and we get things started. The process has gone well. I don't worry about setting things up, I can read directions. But I HATE it when she screams and gags and I can't fix her. Dr. Mageed's and Duffner's nurses are wonderful. They have called through out the day to check on Brooke and her obsessive compulsive mother :) Brooke only had 2 gagging episodes and a short crying fit, then she slept for 4 hours. The infusion went in her rt thigh, so her rt thigh is bigger than her left, but they said 24 hours that will go away. She is happy and playing. My anxiety was all for nothing. So, now that it worked, they will check her numbers Monday and the plan is to do this once a week to keep her IGG levels more level. Today she ended up with 11 hours of IV's. Good thing they are portable, because I like to do things. Steve was gone tonight, so the girls and I went through take out (many different restaurants, we didn't all want the same thing :) and then we ate at a park. Have IV will travel. God once again showed me, I am not in control. It seems so easy when things aren't going as I planned to get upset. But God brought us through another day of first, and it was a good day.
"Trust in the Lord with all your heart and lean not on our own understanding: in all your ways acknowledge him, and he will make your paths straight." Proverbs 3:5-6
Brooke scooting backwards.
Brooke laying on tummy laughing. (not a sight often seen)
Brooke's "electronics." 3 IV pumps and a feeding pump.
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