Back from clinic once again. Brooke did really well. She didn't even scream this time. She likes John, the PA, alot. She laughs and plays with him. Her IGE (test that shows the B cells) has been trending down. (that's the wrong way) So we will do her IVIG weekly at home. That will hopefully help her cold that she has also. The antibiotics she was on didn't change any of her symptoms. Her pneumo titers (shows if she's responding to the vaccines she's had) were good. So the pneumonia and flu vaccine she's had should help keep her healthy. Her kidney functions (show's how her kidneys are working) were slightly elevated. That could be from the antibiotics or because she was ill last week. We'll just watch those.
So now that I told you a bunch of technical stuff, our plan is to just play til next weeks visit. We are back to weekly visits to watch her labs and cold. I've read some of the blogs from last year at this time. We have come a long way baby :) I'm glad we didn't know at the time what we were in for. It made the process so much easier.
Today Macy had a physical. She is 25 1/2 pounds and 33 inches. That is 95% for height and 75% for weight. True Koeman. Macy was excited today to go away with just me. She got out of the van and walked into the MD office like she was quite something. Crazy kid! She is always making us laugh and marvel at how a 1 1/2 year old can be so stubborn as to what she wants. She makes her wants known.
Our hope is to go to Florida in a few weeks to see my parents. The girls have calendars and are counting down the days. Steve and I are praying we get down there in 1 piece with smiles on our faces. (5 kids in 1 car, what are we thinking???) The MD won't let us fly. Please pray that this trip will happen. If anything happens with Brooke we stay home, but our girls will be so disappointed. Steve and I just want them to have fun for a week and relax. They so deserve it!