Blood draw

The clinic visit was quick. Brooke and Macy hammed it up and showed off. Brooke's blood was not in the range they want it so they will increase her Lovenox dose and we will recheck it on Friday. The plan for Lovenox is to give it for 3 weeks and then recheck a CT scan. If the scan is unchanged we will stop the Lovenox. If the CT scan is better we will do Lovenox for 4-6 MONTHS. Yes, I said MONTHS! Not sure what to pray for so, His will be done, and I will do what is asked with a smile on my face :)

Her T cells...........she has once again stumped the BMT team. Her T cells have increased.. YEAH!! Not sure exact numbers yet, but they are higher than 3 months ago. However, her donor cells (Megan's cells) have decreased. That doesn't add up. I told them it's a lab error. Nope, they checked that. Meg's cells are down 20%. So when Meg's cells go down, in theory, Brooke's T cells should go down. Dr. Mageed did find a study where a kid eventually rejected the donor and started making their own T cells. So, maybe? They really don't know. They drew more blood this week to see if her T cells are good quality ones. Hopefully that will put some pieces together. If not, that's ok too. I trust the staff at DeVos. They are honest enough to say they don't know. I have faith enough to say, "I know." It has nothing to do with any of us. Our sermon on Sunday was about Peace. Finding peace in the circumstances we are given. For each of us that is different. Having harmony and balance in our lives. This time of year that seems difficult with the beginning of school, sports, work, kids. But when I think about it, this life was given to us. God gave us these circumstances so we can make a difference to others. Complaining about how busy and tired we are doesn't show Him glory. But once we find the peace that is always there, we also find the balance and the harmony.

So my goal is to have the peace with this craziness of life and the uncertainty of syndromes. Once again I don't know what to pray for. Donor cells, T cells???? So it's for His will do be done in Brooke's life and our life. Because what I "think" needs to be done, may be wrong. (yes occasionally I am wrong, but don't tell Steve :)