It's all good

Hebrews 11: 1 "Faith is being sure of what we hope for and certain of what we do not see."

Jesus Calling devotional said " Trust me and refuse to worry. I am your strength and song.........I can empower you to handle each task as it comes." Obviously there is more, but I think you get the point. I actually was looking up another verse this morning and I noticed I had Hebrews 11:1 underlined. When I did this I have no idea, but it was meant to be read this morning.

Yesterday Brooke had appointments (of course, when doesn't she :) 1st was the surgeon. I did apologize for canceling the tests he had scheduled. After talking to him he agreed Brooke does not need further testing. She does have a hiatal hernia, which means part of her stomach is pushing up through the diaphragm in her abdomen. Many people have this and hers is from her nissen. But she is having no symptoms, she's not refluxing more and not vomiting. We agree if she starts to have symptoms we will call him. If not, then we'll just wait.

On to clinic......she is still on blood thinners and will be until beginning of October when she has another CT. From past blood work it looks like she did have a blood clot, but the CT will be the proof. With the tantrum I had about starting her on blood thinners I guess I have no comment (hehe, what can I say) :)

On to T cells. What do you do when the MD comes in, sits down and says in his little accent, "Shelly I don't know what to say?" I just smiled :) It seems Brooke has puzzled them again. Many of her T cells are going up. Her B cells, which they thought may never en graft have made a huge jump up. However her donor cells (Megans) were at 85% and are now at 20%. Also her over all TREC was at 498 and dropped to 150 (that's not good). They are getting such mixed signals the MD's are confused and don't know what to do. There are 2 things that may be happening. She is either going to reject the transplant and start making her own T cells. Or she is going to reject her transplant and we are going to see all her numbers drop. Steve put it a good way. It's like our safety net has been taken away and now we are waiting to see if Brooke is going to soar or fall. The MD said IF she starts making her own T cells this is VERY rare. He said it's more like a miracle. We are up for miracles :) Fly Brookie Fly!!

Steve and I were discussing our child and I said, I felt worse for the MD than for us. They want so badly to have answers and fix her. It's hard for them to not know what to do. I reassured them, it's all good. Of course we want her fixed but at this point every one's hands are tied. All we can do is wait. Steve and I don't see numbers when we see Brooke, we see a perfect child made in God's image. Dr. Duffner and I also talked about treating the patient. When you look at numbers you get worried, but when you look at the patient, she looks great. She's walking, she talks, she's doing great. Until there is a change in her condition, we just need to hang tight. Of course during our 30 minute conversation Brooke had to cough a couple times. He asked when that started. I told him, "it's Brooke. She's been doing that since birth." :) So I had to promise if she has any change in her condition I'd call right away. Worry warts :)

So, I assume we will be in clinic again next week. Have a great week! This weekend is the Breast Cancer walk/run in Grandville. YEA for all the breast cancer survivors! Leah and I plan to be there for Grandma Koeman and Grandma Blueberry! We've seen fighters and survivors 1st hand. And we are so blessed by them!! Thanks mom's!!