Tuesday, September 27, 2011

Make a WHAT!!!

2 weeks ago I got a phone call. A very nice lady from, "make a wish." In my head I'm was like, "really a sales call, now?" (I was picking the kids up from school and dispensing them to their appropriate locations/I HAD to pay attention). But this lady got my attention when she starting naming people I knew from Devos Children's Hospital. The shortened version is, Brooke's info had been sent into Make a wish, and she was approved to have a wish granted. How exciting is that?!?! It's more exciting for the big girls than for her. She's just happy because they are happy :)
So, what does she wish for? I've been told she wants to go duck hunting, she wants to go to Hawaii and she wants a dog. She really doesn't want any of those things :) This is obviously a process, so we have sent in our paperwork and now we wait to hear from one of their volunteers. I also have emailed our Devos friends, because they are a BIG part of this. What is Brooke allowed to do?
Overall, it's just exciting!

Brooke did meet with her feeding clinic PA. In the big picture, I guess the appointment went fine. They did agree to start a medicine that will enhance her appetite (a stimulant). But I'm waiting to see if its ok to give with her other meds (hopefully I'll know that this week). My thought is, it's worth a try. Maybe if she's hungry, she'll eat. They weren't thinking it was a great idea, but they did agree to it. We also decreased her feedings. She gained another pound. Since she isn't gaining in height we decided to slow down the weight gain and try to maintain. Brooke is very happy with less food.
I'm not in the right place yet for the intensive feeding clinic. At this point, I'm not denying that she may need it someday, I'm just not sure this is the right fit for us. I know God will show us the answer, we just have to be patient and listen. We pray that she will eat and in the mean time, I am researching other feeding clinics to see what there is. It's just complicated.

Growth hormone: we aren't planning to start til the end of October, as long as her tests are ok. We found out yesterday our insurance doesn't cover growth hormone. So I had my whole day planned to argue with the insurance company. But I called the MD office 1st. They made all the calls for me and Children's Special Health is going to cover it. YEAH!!! So now we wait.

Fall is getting closer. The farmers are getting antsy! I even got a text message with a picture of a tractor. That means he's ready :) I love it that my husband loves his job! He told me before, "farming is in my blood." And I truly believe that. So, maybe a week or 2 and the fields will be busy.

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