Sunday, September 18, 2011

A week in review

I'm not sure there is enough space to review the week. The beginning of school is B U S Y, but I must say I am loving it. Leah's in volleyball, she only had 1 game, but it was fun to watch. There will be more games in our future. It was fun to listen to the twins yelling for her. And when she got done Ashley hugged her and said, "great job Leah." I think they might actually like each other :) Most days I wonder.




Ashley and Megan are in Soccer. Also fun to watch. Ashley is slightly tall for her her grade (go figure). I told her this week to use it to her advantage. Steve watched her and she got a goal. That put a smile on her face! Like I've said before I am not a competitive person, so I truly do not know what teams won (I know that's bad). I just want them to play their best and have fun.


Besides that, the girls have school stuff, foot ball games, and church activities are starting up. I do like all the fun stuff.


Someone asked how I do it with 5 kids. She said I have 3 and I keep forgetting things. I told her to re train her mind. EXPECT to forget things, then you aren't disappointed when you do it. I tell my kids, I will forget lunches, homework, to wash the clothes, etc. But I will NOT forget THEM! They are important so they are tops on the list. They just have to work with me on the rest. (However I did write a sticky note once to not forget to pick them up :)
Brooke, oh Brooke. We've jumped right back into MD appointments, lab draws, phone calls from MD. As expected it seems Brooke's Growth hormone is low. Steve and I are just happy this is something we can actually fix. She does need some testing before starting her on growth hormone and that will be in October.
Then her IGG level was 389. They use to want it above 600, when she had less of an immune system. Now they want it above 400. However, they feel she is making some of her own B cell (the IGG level) and they aren't ready to give her IVIG yet, because they want to give her some immunizations and she what her body does with that. (are you following me? :) So, Steve and I agreed because the immunizations won't hurt her. Worse case scenario she doesn't respond to the immunizations and she isn't immune. On a selfish note I told them harvest season is coming up. I cannot be inpatient with a sick Brooke because we decided to "see" what her IGG levels do. If giving her IVIG will keep her healthy, I HIGHLY suggest we give it. They understand. So we give her immunizations next week. Then Oct. 12 we draw her titers to see if she is responding to them and another IGG level. Then decided about IVIG. She also has an MRI Oct 12 to make sure her pituitary gland is working well (which processes growth hormone).


So that's Brooke's current story. If it's too much information, just don't read it, I'm ok with that. I still must say, from the outside she looks perfect just like her sisters. God will mend the rest as well. In time :)

No comments: