Wednesday, September 9, 2009

Breathe!

I wanted to give you an update on clinic today. Brooke's lymphocyte's are at 80% Megan's. That is good! Up from 60%. Brooke is making accomplishments. We went to visit her nurse friends on the floor and they were amazed at the improvements she has made and how much better she looks. The MD also was amazed at how alert, bright and into things she is. After the last few test results, Steve and feel like we can breathe! We have been holding our breath and living for the day for quit a while, which is ok. God gave us grace for each day. But now we feel that we can allow ourselves to think of her future. To imagine her growing up with her sisters and going to school, getting in to trouble, fighting with them and loving them. These are thoughts we haven't allowed ourselves to think, because we didn't know and why set yourself us for disappointment. But improvements are so refreshing!! The future is still unknown but there is light :)
Therapy went well! (Yes I said well.) I have nothing bad to say about therapy. She comes to our house, she has goals for Brooke and did testing on her. I no longer have the therapy stigmatism that I had while we were inpatient. Brooke is getting stronger and now things seem possible.
Now Leah is sick with a cold and this morning she got up and put a mask on. Seem's crazy when your kids get sick and know they have to wear a mask. But no complaints, she just did it! What great sisters Brooke has! We are so blessed!!! Next appt is Friday with neuro-development.

1 comment:

Anonymous said...

Wonderful and exciting! Praise be to God!